General Information
Pulmonary Arteriovenous Malformations
The Nose and Hereditary Haemorrhagic Telangiectasia
Pregnancy and Hereditary Haemorrhagic Telangiectasia
Telangiectasia Self Help Group Newsletter NO-16

 

TSHG Newsletter No 17 Part One of Two
TSHG Newsletter No 17 Part Two of Two
How to increase Iron in your diet
Dental Hygiene Infomrtaion
HHTIC London Questionnaire

 

The Telangiectasia Self Help Group was founded in 1985 to maintain a register of sufferers and to put affected families in touch with one another.

 

The group was initially funded by a donation from the Thames/LWT Telethon Trust. A newsletter is sent to all members on an occasional basis informing them of the developments in the treatments of this disease.


Hereditary Haemorrhagic Telangiectasia
( HHT ) also known as Osler-Weber-Rendu disease, was first described over 100 years ago. It is due to a faulty gene and is very variable causing some people considerable distress whilst others escape with much less severe problems. For many patients, nosebleeds are the main problem although bleeding from the lining of the stomach and intestines occurs in about 20% of cases.

 


For further information or if you wish to become a member please contact :

Mrs Diana Lawson
Co-ordinator/Organiser
Telangiectasia Self Help Group
39 Sunny Croft
Downley
High Wycombe
Bucks
HP13 5UQ
ENGLAND

Tel : (+44) 01494 528047

or alternatively E-mail:

info@telangiectasia.co.uk

 

The Telangiectasia Self Help Group is affiliated to the following Support Groups :

 

 

 


2013, The Telangiectasia Self Help Group

 

 

AVM Support UK provides patient friendly information and support to all those whose lives have been affected by the rare condition Arteriovenous Malformation

 

The Contact a Family website is for families who have a disabled child and those who work with them

 

The Genetic Interest Group (GIG) is a national alliance of organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders / genetic diseases

 

Hereditary Hemorrhagic Telangiectasia Foundation International, Incorporated. HHT Foundation International. This site is dedicated to the individuals and medical professionals who encounter the daily challenges of managing Hereditary Hemorrhagic Telangiectasia.